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Begun in April, 2002, the HANDling
Diabetes Project is a NIH-funded research study which
seeks to define the barriers that keep parents and
children from adhering to complicated medical regimens
and to help parents manage the care of children with
chronic illness.
Investigators Suzanne Bennett
Johnson, Ph.D., and Alexandra Quittner, Ph.D., professors
of clinical and health psychology, will work with
100 families having children under age 11 with diabetes.
During the four year study,
researchers will document the reasons that keep parents
from following the often complicated daily medical
regimes required to manage the disease. These could
include insufficient skills to carry out the treatment,
lack of time management, inability to gain cooperation
from the child and miscommunication between the parent
and health care provider.
On average, compliance with
these complicated medical regimes is less that 50%.
The consequences for not properly following health
care recommendations can be serious. These include
a decline in the child's health and development, absences
from school, increased stress among family members
and higher health-care costs for the child's treatment.
The investigators will measure
the impact of several interventions on the extent
of the caretaker-physician agreement about the child's
recommended treatment plan and the family's actual
daily management of the child's diabetes.
It is hoped that by conducting
interventions in families with younger children, the
problems often seen in adolescents with diabetes will
be minimized. By establishing desirable behavioral
patterns sooner, children should be better able to
manage their own diseases as they enter adulthood.
For more information on the
HANDling Diabetes Project, call Project Coordinator
Dawn Newman Carlson, Ph.D. at (352) 265-0680, ext.
46860.
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